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IHSS Consumers Union

There are big movements afoot for re-organizing the IHSS program. Read about it at Duals Integration Demonstration ( Several organizations in the state: unions of care providers, Public Authorities, County Welfare Directors, health insurance companies, and other organizations have all given comment. Current IHSS consumers, however, those most affected by these changes, were seldom, if ever, consulted in many of the proposals put forth.

The formation of the IHSS consumers Union is the answer to a long wished for organization that speaks and advocates for our needs. Current IHSS Consumers' lives are radically affected by changes to the IHSS Program and need to have a say in the program. In response to some of the more difficult points made in some of the proposals, we have put together this list of demands that represent our views on our rights to determine our lives and hard won civil rights. We have also added demands that have always been missing from a true continuum of care.

We also strongly oppose passive enrollment into any program that would deprive us of our individual providers, be they family members or the providers we have chosen from the community. This is viewed by the IHSS Consumers Union as a bad faith effort to trick us out of our genuine choice of how we receive our most intimate personal choices in in-home supportive services. Many of our people have difficulty responding to mail in time, which is especially egregious because the state no longer allows our providers to open our mail or read it to those who are visually impaired. We view this as a hostile attempt to trick us out of our true choice.

The following demands were put together to express what we cherish as our rights to control our own lives. If you agree, please sign on and join us as a Current IHSS Consumer Member (voting) or Supporting Member (nonvoting) whose support and input we value!


The In-Home Supportive Services (IHSS) program is a time-proven, cost-effective, exemplary model of person-centered care. In order to live independently, everyone would appreciate having consumer-directed, in-home care and assistance as an alternative to costly institutionalization. The California program has served as a beacon for all who age or acquire a disabling condition. The Disability Rights Movement has always been devoted to self-determination, therefore we demand:

Because the IP mode of IHSS requires nothing more than the actual cost of delivering services (i.e. money to the provider to care for the consumer), it is a particular blessing to governments in times of fiscal difficulty. As the baby boomers age and need these services, its cost efficiency and utility will be undeniable. We, the undersigned current IHSS consumer members and our supporters of the IHSS Consumer's Union, believe there is no place like home for all citizens as they age or acquire a disabling condition. The above-mentioned demands are put forth in order to safeguard the dignity and self-determination of all persons who need In-Home Supportive Services.

Read the story of how IHSS began:  A Downward Spiral

Join the IHSS Consumer Union on Facebook today at